Conquering Your Fibromyalgia Podcast
The podcast and book were started with my patients in mind. Due to time restrictions, I recognized the need for more education on fibromyalgia and related illnesses. If you have not checked out the book, the podcast is meant to supplement what was covered there. Many people worldwide will never be able to see me as their doctor, and I hope this podcast offers valuable insights, information, and wisdom from a medical doctor using a multifaceted evidence-based approach from the perspective of a pediatrician, internist, lifestyle medicine physician, and clinical lipidologist. If you are a doctor or another health care professional caring for those with invisible illnesses, I hope these serve you well. Many people have either been told or read that fibromyalgia isn't real or that it is just all in their heads. This misunderstanding, unfortunately, causes harm and is a disservice to those suffering. If you are one of the estimated more than 10 million people in the United States who are suffering from fibromyalgia, then you know it is real. If you don't have fibromyalgia, you will, at a minimum, gain a deeper understanding of what you or your loved one is experiencing. If you have fibromyalgia, you will feel validated for what you have endured. I have over 27 years of experience as a doctor and am continuing to learn about medical problems, including invisible illnesses like fibromyalgia and related problems. You can learn more by visiting www.conqueringyourfibromyalgia.com.
Conquering Your Fibromyalgia Podcast
Ep 158 Ehlers-Danlos, Hypermobility and Mast Cell Activation Syndromes with Jeannie di Bon
Text Dr. Lenz any feedback or questions
Understanding Ehlers-Danlos Syndrome: Insights from Jeannie Di Bon
In this episode, a special guest, Jeannie Di Bon, a movement therapist who specializes in hypermobility, Ehlers-Danlos Syndrome (EDS), and chronic pain, shares her expertise and personal journey. Diagnosed with EDS, Mast Cell Activation Syndrome, POTS, and chronic fatigue syndrome, Jeannie discusses the challenges of diagnosing these conditions, the significance of diagnosis for patients, and her development of a supportive online community and tools via the Zebra Club. She also addresses the complexities of EDS, similar conditions, and the importance of clinician awareness.
00:00 Welcome to the Podcast: Introducing Jeannie Di Bon
01:15 Understanding Ehlers Danlos and Hypermobility
03:26 The Challenge of Diagnosis and Misdiagnosis
09:59 Jeannie's Personal Journey with EDS
14:13 From Chronic Pain to Movement Therapy: Jeannie's Professional Evolution
22:14 Expanding Access: The Zebra Club and Online Resources
24:58 Addressing Comorbidities: ADHD, Autism, and Hypermobility
26:51 Final Thoughts: Hope, Support, and Education
A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.
